Tracking devices may improve quality of life for parents of children with autism

National study suggests trackers using radio, Bluetooth or global positioning system technology help ease anxiety for parents of children who wander

Many children with Autism Spectrum Disorder face increased risk of injury when they wander away from adults who care for them. Even when parents take safety precautions such as installing window bars at home, studies show parents' fear of their children wandering is a significant source of stress for families. New research being presented at the 2017 Pediatric Academic Societies Meeting suggests that electronic tracking devices worn by children may reduce how often children wander and help ease parents' anxiety.

Researchers will discuss the study abstract, "Impact of Tracking Device Technology on Quality of Life for Families with a Child with an Autism Spectrum Disorder," during a platform presentation on Saturday, May 6, at the Moscone West Convention Center in San Francisco. They will also present 5 other abstracts about studies they conducted using the same cohort, currently the largest national sample of children who have wandered, during a poster session on Tuesday, May 9.

According to national estimates, more than a quarter million children with autism and other developmental disorders wander away from adult supervision each year, said Andrew Adesman, MD, FAAP, a senior investigator for the abstracts being presented and Chief of Developmental & Behavioral Pediatrics at the Seven and Alexandra Cohen Children's Medical Center of New York.

"In recent years, parents and professionals have become increasingly aware of not only the dangers associated with wandering by children with autism, but also the emotional toll this places on families and the limits it imposes on activities," Dr. Adesman said.

"Given the magnitude of safety risks and parental concerns, it is important to find evidence-based solutions that reduce the likelihood of injury to children and can provide parents with less reason for worry," he said.

For the studies, researchers examined online survey responses from 1,345 parents invited to participate through autism organizations nationwide. The parents answered questions about their children's developmental diagnosis and severity, past wandering behavior and prevention strategies they'd used to address the behavior, including extra locks and physical barriers, child harnesses, and electronic tracking devices that used radio, Bluetooth or global positioning system (GPS) technology to help parents quickly find children who wander off.

Results suggest that that electronic tracking devices reduced parent-rated wandering frequency by nearly a quarter (23 percent) while also having wider effects on household anxiety levels, routines and perceived quality of life. The majority of parents (87 percent) said that before using an electronic tracking device, concerns about wandering affected decisions whether to let their child spend time with friends or family in their absence, for example. This compared to 60 percent of parents who said this was the case while using an electronic tracking device.

Overall, 96 percent of parents who said they were currently using an electronic tracking device said it made their quality of life better (47 percent send it made it "somewhat better," and 49 percent said "much better.")

"Despite the development of several types of electronic tracking devices aimed at helping to reduce risks related to wandering by children with autism and other developmental disorders, currently there are no published findings regarding the effectiveness of these devices or their impact on families," said Laura McLaughlin, Developmental & Behavioral Pediatrics Research Assistant and Principal Investigator for the studies.

Dr. Adesman said the findings suggest physicians who care for children at risk for wandering should become informed about different electronic tracking devices and counsel parents about potential benefits.

Story Source:

American Academy of Pediatrics

THE ROAD TO THE BCBA

 By Tameika Meadows, BCBA

THE ROAD TO THE BCBA

I often publish posts on my blog that come directly from questions/comments I get via email (like myFAQ series). I feel that if 1 or 2 people have the same question, then its likely many other people are wondering the same thing and just didn’t ask. 

Lately I have been getting a ton of emails from ABA therapists working towards their BCBA certification, and wanting to know what to expect from the “Big Exam”. The exam is that last step on that long road towards becoming a BCBA, and walking closer and closer to it can understandably cause a lot of anxiety. I was certified in 2012, and I’m happy to share my experiences of preparing for the BCBA exam in the hopes that it can help someone else who is just starting the process.

The specific steps necessary for obtaining certification are provided in detail on the BACB website, but what many people want to know is “So….whats the test like???” The exam is the confidential property of the BACB, so the information found online about the exam will be vague, or speak in generalities. 

So, why pursue certification? You are a fan of data, the science of behavior, and you actually find pleasure in creating graphs. Or, your passion for this field and love of the work make ABA something you want as a career.  In your perfect world, ABA is what you would live and breathe.

If you are pursuing certification simply because you want to make a lot of money (there is great salary range, but a “high” salary isn’t necessarily guaranteed), you want to get away from “the table” (some companies require BCBAs provide direct therapy), you love working with kids with Autism (some BCBAs dont even work with individuals with Autism), or you think BCBAs just have desk jobs (I will explain this more below), then…..maybe this isn’t such a career path for you.

In addition to the requirements of the BACB, I also think that certain personality traits are necessary to be excellent at this job. To name a few: time management skills, excellent oral and written communication skills, creativity, leadership skills, ability to multitask, ability to work autonomously, problem solving skills, and attention to detail. To sum it up, I think many of the traits Type- A personalities tend to have would serve you well in this job.  Being a BCBA isn’t necessarily the cushy desk job some people think it is. It’s super difficult to describe a day in the life of a BCBA because depending on where you work, the population you serve, the ages you serve, etc., there will be much variability. 

So a hypothetical day for a BCBA could include providing direct therapy to clients, supervising direct staff and providing feedback, attending meetings, parent training, conducting workshops or trainings, conducting assessments or FBAs/FAs, school facilitation or observation, community outing skill training, and/or administrative tasks (at home or at the office) such as program development, creating materials, reading research articles, or looking for patterns and trends in collected data.

So now that you know what to expect from the job, here’s some tips for preparing for the exam. These tips may be helpful for you, and they may not. This is just what I found to be successful and helpful.

The BCBA Exam

-          Get into a great study group (either online or in person), that has a few BCBAs in it. It will be really helpful to have people present who have actually passed the exam.

-          Create study flashcards and visuals, and use these to build fluency.  When I study I need to do more than just read material. I made tons of flashcards of terms and concepts and reviewed them regularly, and for some of the cards I would tape them to the walls in my house so I was constantly looking at them. That visual cue was very helpful.

-          Dedicate time each day to reviewing material. Set a schedule for yourself and stick to it. Carve out time, and set a space in your home for studying. For me, I studied best first thing in the morning with no TV, cell phone turned off, and music playing softly. Do what works best for you.

-          Get the “White Book”. The Cooper ABA book is essential in this line of work, and it’s an amazing study resource. Don’t just read it though; study the definitions and terms, answer the end of chapter questions, and discuss the chapters in your study group. This is a book you will reference throughout your career, so it’s a good idea to go ahead and purchase it now. Another study resource that worked for me is the BDS modules.  They’re similar to what the actual exam is like, and present questions in content area modules (such as a Behavioral Assessment section). The modules are also timed, so this is great practice for answering questions under a time crunch.

-          Reference the BCBA exam Task List, to assess your strengths and deficits, such as Ethical Conduct Guidelines. You want to use your study time wisely…it isn’t time effective to spend an hour reviewing material you are strong in. Instead use that time to focus on your deficits. Put on your Behavior Analyst thinking cap: If you were teaching a skill to a child and they just weren’t getting it, would you spend the majority of the session asking them things they already know, or modifying your teaching for the areas they’re struggling in?

-           Try to gain experience in the content areas you struggle in. I know for me, I learn better by doing than by reading about something. If you are stuck on a particular concept or term, such as the difference between a mand and a tact, then discuss these deficits with your supervisor. Seek out opportunities to actually apply these behavior analytic concepts and make the terms “real”. There are many terms that I now understand better because I have  implemented them during a therapy session. Just reading about them wasn’t enough for me to fully grasp it. Speaking of your supervisor, USE THEM! I have provided supervision for people pursuing certification and a common problem I notice is not asking enough questions/not asking for enough help. Especially if you are paying for supervision  then you really need to take advantage of the professional sitting in front of you at your supervision meetings.

-           Lastly, but by no means least of all, what helped me prepare for the BCBA exam the most wasPrayer. Lots and lots of prayer. I had so much anxiety about the exam, about being prepared and really doing well, and intense pressure may be necessary to make diamonds, but it’s horrible when trying to learn and process information. Optimal learning just can’t occur when the body is full of stress. Over analyzing and stressing over the exam on a daily basis will only make it that much more difficult when you are sitting down to take the exam.

*Resources:

-A blog with some great evidence based study tips: Mindful Rambles

-If you are unable to find a local study group, an online study group I can recommend is called Students of Applied Behavior Analysis, and it is on Facebook.  The group is a good mix of people at various stages of preparing for the BCBA exam, as well as experienced BCBAs who can share their experiences and tips. The group also has a resource library containing free study materials. 

-This blog post is a must read for all my peeps prepping to cross that line into BCBA status. PLEASE dont get those 4 letters behind your name and then become one of those condescending, egotistical, and just plain rude Behavior Analysts who give the field a bad name